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Thanks Jamie and tower as well as so many that I'm hearing from. I never quite thought of myself as that inspiring but, I always remember that it is not me but, some wonderful things God does through me or using me which it is a place that a person has to be willing to be in.

Jamie I wish i could be more detailed but, I'm just learning right now as i go. In the last 3 weeks after being with the same hematologist/oncoligist since 4/17/2001 my first hospital stay for the AVM problem with HMG at 6.7 and finally with extreme pressure from him and myself we got a GI and a surgeon to operate. I kno only because i was told what would happen is they had big stainless steel tables in the room and were going through my GI tract by hand till they found the bleeding. This was 3 years after first hosptal stay. Doc which is what i cal hematologist has taken on the role of a general Doc for me. He worked so many times to keep me alive. Doc and the great GI we finally found last 6 months gave me their personal cell numbers as well as their home numbers. Well you get it. Before I would get rushed to hospital and they would start whole blood and vitamin K shots which by the time the lazy Gi's I had been dealing with would show up at their convience and scope plus run me through tests I never heard of like Meckles Scan. Anyway i would not be losing blood by the time they got theree and I would stay a whole week and get sent home till I was back again after anywhere from 2 weeks towards the end up to 3 to 6 months before the huge area would ooze blood again. No barium I swallowed or radiation shot in me would show up anything, WIERD! At the end i could mtell i would not make it till the last of the month and i cannot ecplain it but, my body just was able to tell me it was over that it had fought as hard as it could and could not go on. I know it sound so dramatic but, finally my Doc found a Gi who hunted around and found a hot shot surgeon and they split me from my sternum to about 4" below belly button and then cut me from there both directions following the bottom of my vertical incision around to both corners of my hips and spread me back to beging the search. If they knew how easy it was going to be to find they said the cut would have been about 7" long under my sternum. Right as i was going to room to be prepped my Pastor asked the nurses if he could go and if he was told no it would be to bad as he wanted to Pray for wisdom for the docs and give me comfort till I went to surgery. They first gave him a hard time but, I guess looking into his face just said come on let us gown you etc. When it came time He prayed a simple short Prayer which i found out he Prayed with family later. He just asked God to give them wisdom and that what ever the problem was that God would make it glow RED like a NEON SIGN. Well after the cut and pulling me back for a look what they saw. My stomach and small intestines were so inflamed that the surgeon who heard none of this as i vereified it but, surgeon came out to family and friends to tell them about how small the cut could have been but, that my stomach glowwed like a RED NEON SIGN. I in room after recovery tolf the family what was Prayed over me right before surgery and they told me what was told to them word for word by surgeon. GI problem turned out OK except triggering the chain reaction of events i mentioned with Neuropathy problem, blackouts, and then seizures. My neuro asked if I would not mind seeing a new neuro so i did and second follow up which was quick he asked if I would mind seeing and heart eletrician as he sat me down and explained how they are split into 2 groups electrician and plumber which i got a kick out of. Well my Doc said great as he had been trying to get me to go see this new specialist neuro. The new neuro sent me after 2 visits and the test he ran as i had began to blaackout and get dizzy agian. He said it was not connected to a neuropathy although we did have some serious stuff to look into. So I went to the cardio and he did 3 tests the first day and had me to come to by told me i had 2 enlarged valves and one was leaking. He scheduled a head/tilt test 11/2 (whtaever that is) and the EP on 11/7. My Doc, the neuro, and cardio blame it on all the oxygen deprivation I had for 3 years. Whatever it is water under the bridge so I ask them where do we go from here. Drill o hole in head if you can zap the area and same as heart for now will be great. I'm not real brave, just tired wanting it to end and not afraid anymore of whatever happens. Just get it over so i can go back to the high revs I normally lived all the time. I do not want to make either one angry as i have been told the neuro and cardio are the best at what they do. The electrician said he would have a plumber with him in case needed. I get the feeling I'm not being told all or it is not known. There is much more but, can share that later if desired. My daughters with all the other stuff that has happened said as sorry as allot of it sounds the girls said man dad you should have a book written or movie made about all that has happened to You.

Jamie it has been an ongoing battle at some level or another for about 10 years. When the bleeding started I was playing on 4 to 5 softball teams at one time but, it had kept getting harder with shortness of breath.
There are many with worse than I have to deal with. Look at single parents. I hope I have given You more to go on etc. Anyone can offer ideas on all or any part of this and Jamie if you would like to know more I can possible answer specific questions with PM's.

TAZ